Clinician, caregiver and patient perspectives of the continuum of care for autism

Kayla Pope, Joy Doll, Anastasia Kyvelidou, Holly Stessman, Kelly Nelson, Lisa Jordan

Research output: Contribution to journalArticle

Abstract

Autism spectrum disorder (ASD) is a complex, multi-faceted diagnosis. The research team sought to understand ASD through perspectives of stakeholder groups related to barriers in services for individuals with ASD. Stakeholders were recruited to participate in focus groups including patients with ASD, caregivers, health care providers, education specialists and insurance providers. Transcripts from each focus group were coded and themed using a systematic qualitative research methodology. Four themes emerged: burden of care; one size does not fit all; the need is more than the system supports; and coordination and centralization of services is the ideal but seems impossible with the current complexity. The research team now has clearer vision of the challenges of ASD to design a collaborative care model.

Original languageEnglish (US)
Article number100335
JournalJournal of Interprofessional Education and Practice
Volume19
DOIs
StatePublished - Jun 2020

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All Science Journal Classification (ASJC) codes

  • Education

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