TY - JOUR
T1 - Clinician, caregiver and patient perspectives of the continuum of care for autism
AU - Pope, Kayla
AU - Doll, Joy
AU - Kyvelidou, Anastasia
AU - Stessman, Holly
AU - Nelson, Kelly
AU - Jordan, Lisa
N1 - Funding Information:
This study was funded through support by the Dr. George F. Haddix President's Faculty Research Fund at Creighton University .
Publisher Copyright:
© 2020
PY - 2020/6
Y1 - 2020/6
N2 - Autism spectrum disorder (ASD) is a complex, multi-faceted diagnosis. The research team sought to understand ASD through perspectives of stakeholder groups related to barriers in services for individuals with ASD. Stakeholders were recruited to participate in focus groups including patients with ASD, caregivers, health care providers, education specialists and insurance providers. Transcripts from each focus group were coded and themed using a systematic qualitative research methodology. Four themes emerged: burden of care; one size does not fit all; the need is more than the system supports; and coordination and centralization of services is the ideal but seems impossible with the current complexity. The research team now has clearer vision of the challenges of ASD to design a collaborative care model.
AB - Autism spectrum disorder (ASD) is a complex, multi-faceted diagnosis. The research team sought to understand ASD through perspectives of stakeholder groups related to barriers in services for individuals with ASD. Stakeholders were recruited to participate in focus groups including patients with ASD, caregivers, health care providers, education specialists and insurance providers. Transcripts from each focus group were coded and themed using a systematic qualitative research methodology. Four themes emerged: burden of care; one size does not fit all; the need is more than the system supports; and coordination and centralization of services is the ideal but seems impossible with the current complexity. The research team now has clearer vision of the challenges of ASD to design a collaborative care model.
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U2 - 10.1016/j.xjep.2020.100335
DO - 10.1016/j.xjep.2020.100335
M3 - Article
AN - SCOPUS:85082822981
VL - 19
JO - Journal of Interprofessional Education and Practice
JF - Journal of Interprofessional Education and Practice
SN - 2405-4526
M1 - 100335
ER -